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This publication is partially supported by the Health Resources and Services Administration Maternal and Child Health Bureau through grant number T76 MC00005-49.


 
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Data Resources

This is a guide to a variety of relevant MCH data sources for US, State and local level data. It includes basic information about the data set and an example of the type and format of available data. (This list is updated frequently; please check back for additional resources.) These data sets are selected based on their potential usefulness to MCH practitioners, their ease of use and accessibility, and the availability of data at a state and/or local level. If you have questions about using these resources or suggestions for additional resources, please feel free to contact us.

KIDS COUNT Data On-line        

State-level Data:
Description:  This system contains data for over 75 measures of child well-being, including all the measures regularly used in the KIDS COUNT Data Book as well as a comprehensive set of vital statistics related to births.

Geography: 50 States, the District of Columbia, the U.S. Limited data also available for Puerto Rico and the U.S. Virgin Islands.

Format:  Web-based, interactive, with profiles, graphs, maps, rankings and raw data.

Census Data: 
Description: Indicators of child well-being released by the 2000 U.S. Census. View data on Age and Sex, Race, Hispanic Origin, Living Arrangements, Income and Poverty, Employment, Education, Language, and Disability Status.

Geography: United States, individual states, the nation's largest cities, counties, American Indian/Alaska/Native Hawaiian Home Lands, Consolidated Metropolitan Statistical Areas, Metropolitan Statistical Areas, Primary Metropolitan Statistical Areas, Congressional districts (for the 108th congress), state legislative districts, and New England Towns.

Format: Web-based, interactive with profiles, rankings and raw data.

CLIKS: 
Description: This website brings together data on the well-being of children collected by KIDS COUNT grantees from state and local sources. The unique system allows users to access state-specific inventories of data from local sources, such as health departments, human services agencies, and schools. The content of state pages is determined by participating KIDS COUNT partners using data from local jurisdictions.

Geography:  Most states available, including geographies determined by state KIDS COUNT network partner, primarily counties, cities, and New England Towns.

Format:  Web-based, interactive with profiles, graphs, maps, rankings and raw data.

:KidsCount data exampleKIDSCOUNT data example 2

 

 

National Survey of Children's Health

Description:  The NSCH is a national survey conducted in the United States by telephone in English and Spanish during 2003 – 2004.   It provides a broad range of information about children’s health and well-being collected in a manner that allows comparisons among states as well as nationally. Survey results are weighted to represent the population of non-institutionalized children ages 0-17 nationally, and in each state.  Some data by income and race are available.

Geography:  United States and 50 states.  No sub-state data.

Format:  Web-based, interactive, 60 child health indicators, state profiles, Healthy People 2010 indicators, and indicators by survey sections.

NSCH data example

 

 

PRAMS (Pregnancy Risk Assessment Monitoring System)

Description:  PRAMS is a surveillance project of the Centers for Disease Control and Prevention (CDC) and state health departments. PRAMS collects state-specific, population-based data on maternal attitudes and experiences before, during, and shortly after pregnancy. PRAMS provides data not available from other sources about pregnancy and the first few months after birth. These data can be used to identify groups of women and infants at high risk for health problems, to monitor changes in health status, and to measure progress towards goals in improving the health of mothers and infants.

Geography:  27 states. Sub-state data availability varies by state.

Format:  Available from the state coordinators; click here to identify and contact each participating state. Each state’s questionnaire and reporting is unique.

PRAMS example

 

 

American Community Survey

Description:  The American Community Survey is a nationwide survey conducted by the US Census Bureau that replaces the long form of the census.  It collects a set of detailed estimates about household characteristics and housing on an annual basis, with information available for smaller geographic areas at less frequent intervals.  Available data includes information on disability, births, race and ethnicity, income and education.  Raw data files (called PUMS) are also available for more detailed analysis.

Geography: United States, individual states, cities, counties, places, Metropolitan Statistical Areas, Congressional districts.  Areas of smaller population may not yet be available.

Format:  Web-based, interactive tables, which can be downloaded in multiple formats for import into programs such as Excel.  Limited mapping capacity also available.

ACS example

 

 

National Survey of Children with Special Health Needs, 2001

Description:  The national Survey of Children with Special Health Needs is a special module of SLAITS, the State and Local Integrated Telephone Survey conducted by the CDC. The primary goal is to assess the prevalence and impact of special health care needs among children in all 50 States and the District of Columbia in 2001. This survey explores the extent to which children with special health care needs (CSHCN) have medical homes, adequate health insurance, and access to needed services. Other topics include functional difficulties, care coordination, satisfaction with care, and transition services.

Geography:  A national sample, plus a sample of 750 children with special health needs in each state.

Format:  Web-based, interactive, includes prevalence and demographics, health and system performance measures, and state profiles.

CYSHN example

 

 

March of Dimes PeriStats

Description:  The March of Dimes PeriStats website provides access to twelve indicators of maternal and infant health data including birth rates, preterm birth, low birthweight, prenatal care, infant mortality, multiple deliveries, delivery methods, maternal smoking, Chlamydia, and health insurance rates.

Geography:  National, State, county and city level data for most indicators.

Format:  Web-based, interactive, graphs, maps, summaries and fact sheets.

peristats example

 

 

The Oral Health of Children: A Portrait of States and the Nation 2005

Description:  The Oral Health of Children is a chart book on oral health data from the National Survey of Children’s Health.  It includes general information about oral health issues as well as survey results in PDF form.  Some data is available by income, race, age and gender.  A free paper copy of the publication can also be ordered.

Geography:  National and state level data.

Format:  National data – text and graphs; State data – data sheets in PDF format.

 

 

The Coverage Gap: A State by State Report on Access to Care

Description: The Robert Wood Johnson Foundation (RWJF) commissioned the State Health Access Data Assistance Center (SHADAC), located at the University of Minnesota School of Public Health, to develop a comprehensive state-by-state analysis on access to health care by people who do and do not have health care coverage.  Using data from the Centers for Disease Control and Prevention's 2004 Behavioral Risk Factor Surveillance System (BRFSS) - a national survey of preventive and health risk behaviors - the researchers analyzed health disparities between insured and uninsured adults. Using data from the U.S. Census Bureau Current Population Survey, they also looked at the number of Americans age 50-64 that are without health care coverage.

Geography:  National and state level data.

Format:  PDF Report.

coverage gap example

 

 

Healthy Youth!  CDC Division of Adolescent and School Health (DASH)

Description: Data from the Youth Risk Behavior Survey (YRBSS), School Health Policies and Programs Study, and School Health Profiles (including information on asthma; physical education; HIV, STD and pregnancy prevention; and unintentional injury and violence) as well as a Childhood Overweight Fact Sheet are available by state.

Geography:  State level data.  Some data are not available for every state.

Format:  PDF Reports.

Youth example

 


 

Breastfeeding Data and Statistics from the National Immunization Survey

Description: Data from the National Immunization Survey provide overall population estimates for the initiation, duration, and exclusivity of breastfeeding.

Geography:  National level; breastfeeding rates by age available at the state level.

Format:  Tables and maps.

breastfeeding research example


Quick Health Data on Line (from the Office of Women’s Health)

Description: County-level health status data is available on over 7,000 variables for 3,500 geographic areas.  Data in the system are organized into the following categories with many subcategories under each topic:

  • Demographics
  • Codes and Status
  • Mortality
  • Access to Care
  • Infectious/Chronic Disease
  • Reproductive Health
  • Maternal Health
  • Mental Health
  • Violence and Abuse
  • Prevention

Geography: County-level data for all 50 states, the District of Columbia, and US territories and possessions. Data are available by gender, race and ethnicity and, to the extent possible, age.

Format:  Tables and maps.

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